Fetal Alcohol Spectrum Disorder - Across the Lifespan: Presentations

Wed 7 Oct 2009 | Thu 8 Oct 2009 | Fri 9 Oct 2009

Fetal Alcohol Spectrum Disorder (FASD) – Across the Lifespan – Final Program

Conference Moderator: Nancy Reynolds, President and Chief Executive Officer, Alberta Centre for Child, Family and Community Research

Wednesday, 7 October 2009

08:00 – 08:20

• Opening Remarks 
  The Honourable Iris Evans, Minister of Finance and Enterprise 
  The Honourable Janis Tarchuk, Minister of Children and Youth Services
   

08:20 – 09:05

QUESTION 1: What is Fetal Alcohol Spectrum Disorder (FASD) and how is it diagnosed?

• Overview of FASD 
  Gail Andrew, Member, Board of Directors, Canada Northwest FASD Research Network; Medical Site Lead - Pediatrics, Medical Director - FASD Clinical Services and Pediatric Consultant, Pediatric Programs, Glenrose Rehabilitation Hospital 
  Download Presentation 
• A personal perspective 
  Myles Himmelreich, Director of Programming, Canadian FASD Foundation
• Jury question and answer 
   

09:05 – 12:00

QUESTION 2: Do we know the prevalence and incidence of FASD in different populations, and can the reporting be improved?

• Prevalence and incidence in Alberta and Canada
  Suzanne Tough, Scientific Director, Alberta Centre for Child, Family and Community Research
  Download Presentation 
• Prevalence and incidence internationally
  Philip May, Professor of Sociology and Family and Community Medicine, University of New Mexico; Senior Research Scientist, Center on Alcoholism, Substance Abuse, and Addictions 
  Download Presentation 
• Jury question and answer 
• Extent and impact on child development 
  Ben Gibbard, Developmental Pediatrician, Alberta Children's Hospital; Assistant Professor, Department of Pediatrics, Faculty of Medicine, University of Calgary 
  Download Presentation 
• Prevalence of FAS in foster care
  Susan Astley, Professor of Epidemiology/Pediatrics, University of Washington; Director, Washington State Fetal Alcohol Syndrome Diagnostic and Prevention Network 
  Download Presentation 
• Genetic pre-disposing factors 
  Albert Chudley, Medical Director, Winnipeg Regional Health Authority Program in Genetics and Metabolism; Professor, Department of Pediatrics, University of Manitoba 
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• Direct and indirect mechanisms for alcohol damage to the brain 
  Joanne Weinberg, Professor and Distinguished University Scholar and Acting Department Head, Cellular and Physiological Sciences, University of British Columbia 
  Download Presentation 
• Jury question and answer 
   

13:00 – 15:20

QUESTION 3: What are the consequences of FASD on individuals, their families and society?

• Economic implications 
  Phil Jacobs, Professor, Gastroenterology Division, Department of Medicine, University of Alberta; Director of Collaborations, Institute of Health Economics 
  Download Presentation 
• Consequences on the community
  Mary Berube, Director, Intergovernmental Initiatives, Ministry Support Services Division, Alberta Children and Youth Services 
  Download Presentation 
• Impact on system usage within foster care 
  Linda Burnside, Executive Director, Disability Programs, Manitoba Family Services and Housing 
  Download Presentation 
• Jury question and answer 
• Co-morbidities with mental health for an individual with FASD 
  Dan Dubovsky, FASD Specialist for the Substance Abuse and Mental Health Services Administration (SAMHSA), FASD Center for Excellence 
  Download Presentation 
• Consequences for communities supporting adults with FASD
  Diane Malbin, Executive Director, Fetal Alcohol Syndrome Consultation, Education and Training Services 
  Download Presentation 
• Jury question and answer 
   

15:20 – 16:35

QUESTION 4: How can FASD be prevented?

• Pre-conception initiatives 
  Lola Baydala, Associate Professor of Pediatrics, University of Alberta
• Inventory of primary prevention campaigns 
  Robin Thurmeier, FASD Resources Researcher, Saskatchewan Prevention Institute 
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• Primary care physician perspective 
  June Bergman, Associate Professor, Department of Family Medicine, Faculty of Medicine and Dentistry, University of Calgary 
  Download Presentation 
• Jury question and answer 
  
  

Thursday, 8 October 2009

08:00 – 08:15

• Opening Remarks
  Gail Andrew, Expert Chair
   

08:15 – 09:40

QUESTION 4: How can FASD be prevented? (continued)

• Mentoring programs for at-risk mothers
  Nancy Whitney, Clinical Director, King County Parent-Child Assistance Program, University of Washington 
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• Strength and support: A women's perspective 
  Amy Salmon, Managing Director, Canada Northwest FASD Research Network; Clinical Assistant Professor, School of Population and Public Health, Faculty of Medicine, University of British Columbia 
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• Prevention of FASD: A Broader Strategy in women's Health 
  Nancy Poole, Research Associate, British Columbia Centre of Excellence for Women's Health; Research Consultant, Women and Substance Use Issues, British Columbia Women's Hospital 
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• Jury Question and Answer 
  
  

09:40 – 14:40

QUESTION 5: What policy options could more effectively support individuals with FASD and their families across the lifespan?

• Educational system, parental, and community support 
  Frank Oberklaid, Director, Centre for Community Child Health, Royal Children's Hospital, and Professor, Pediatrics, University of Melbourne 
  Download Presentation 
• Shifting responsibility from the individual to communities of care 
  Audrey McFarlane, Executive Director, Lakeland Centre for Fetal Alcohol Spectrum Disorder 
  Download Presentation 
• Education policy 
  Elizabeth Bredberg, Education Consultant, Bredberg Research and Consulting in Education 
  Download Presentation 
• Jury Question and Answer 
• Development of life skills: education, parenting, and family mentoring 
  Claire Coles, Professor, Department of Psychiatry and Behavioral Sciences and Pediatrics, Emory University School of Medicine; Director, Fetal Alcohol and Drug Exposure Clinic, Marcus Autism Center, Children's Health Care of Atlanta 
  Download Presentation 
• Life stages and transitions 
  Brenda Bennett, Executive Director, FASD Life's Journey Inc. 
  Download Presentation 
• Social services and corrections 
  Sharon Brintnell, Professor, Department of Occupational Therapy, and Director, Occupational Performance Analysis Unit, Faculty of Rehabilitation Medicine, University of Alberta 
  Download Presentation 
• Jury Question and Answer 
• Treatment of FASD 
  John McLennan, Assistant Professor and Child Psychiatry Consultant, Departments of Community Health Sciences, Psychiatry, and Paediatrics, University of Calgary 
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• Justice issues 
  Mary Kate Harvie, Associate Chief Judge, Provincial Court of Manitoba 
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• Policy development in FASD 
  Dorothy Badry, Assistant Professor, Faculty of Social Work, University of Calgary 
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• Jury Question and Answer 
  
  

15:00 – 16:30

QUESTION 6: What further research into FASD is needed?

• Health and social policy 
  Sterling Clarren, CEO and Scientific Director, Canada Northwest FASD Research Network; Clinical Professor of Pediatrics, Faculty of Medicine, University of British Columbia; Clinical Professor of Pediatrics, University of Washington School of Medicine 
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• Clinical 
  Sara Jo Nixon, Professor, Department of Psychiatry, University of Florida, Clinical and Translational Science Institute, Biobehavioral Core 
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• Child health and well-being 
  Bruce Perry, Senior Fellow, The ChildTrauma Academy
• Extended jury question and answer 
  
  

Friday, 9 October 2009 

09:00 – 11:00

• Reading of the Consensus Statement by Jury Chair
  The Honourable Anne McLellan
• Open discussion
• Closing remarks
  The Honourable Anne McLellan, Jury Chair
  Gail Andrew, Expert Chair
  Egon Jonsson, Executive Director and Chief Executive Officer, Institute of Health Economics