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Optimizing Access to Care for Patients with Idiopathic Pulmonary Fibrosis: A Multi-stakeholder National Forum

Optimizing Access to Care for Patients with Idiopathic Pulmonary Fibrosis Multi-stakeholder National Forum: Presentations

Monday, 25 April 2016
Toronto, Ontario

  • Moderator:
    Chris Henshall

Opening and Opening Remarks

Health care policy and idiopathic pulmonary fibrosis: Values of patients and society – shared interests? Do we need a recommendations/charter?

  • Questions and Answers from Audience

What do patients value and what needs to be considered?

  • Panelists:
    Durhane Wong-Reiger, Canadian Organization for Rare Disorders (CORD)
    Clarys Tirel, Ontario Respiratory Care Society – Ontario Lung Association
    Samantha Reed, Informal Caregiver
  • Directed discussion with first session panelists
  • Questions and Answers from Audience

How can we make this work?

  • Panelists:
    Genevieve Tremblay, Quebec Lung Association
    Kevin Wilson, Saskatchewan
    Don Husereau, IHE
    Barbara Barr, Patient

Recommendations and a charter for policy-makers and health service administrators: Feasible and relevant?

  • Panelists:
    Gillian Bethel, Ministry of Health and Long-Term Care (MOHLTC), Ontario
    Amy Henderson, Canadian Lung Association
    Dr. Fiona Clement, University of Calgary

Wrap Up and Next Steps

  • Don Husereau, IHE