Optimizing Access to Care for Patients with Idiopathic Pulmonary Fibrosis: A Multi-stakeholder National Forum

About the Optimizing Access to Care for Patients with Idiopathic Pulmonary Fibrosis Multi-stakeholder National Forum

25 April 2016
Toronto, Ontario

On April 25th, The Institute of Health Economics (IHE), in partnership with the Canadian Pulmonary Fibrosis Foundation (CPFF) and supported by an unrestricted grant from Boehringer Ingelheim (Canada) Ltd. (BI), held a national, multi-stakeholder roundtable forum to discuss policy recommendations on idiopathic pulmonary fibrosis (IPF) care.

The forum included about 30 participants, ranging from policy-makers and health system administrators, experts in health technology assessment, patients, and care providers, who gathered in Toronto, Ontario, to discuss previously drafted evidence-informed policy recommendations on idiopathic pulmonary fibrosis (IPF). The policy recommendations were developed by a group of patients and caregivers last fall.

Download Summary Report
Optimizing access to care for patients with idiopathic pulmonary fibrosis multi-stakeholder national forum – Summary report and recommendations for policy-making

The objectives of this roundtable were to:

  1. Discuss the need for patient-led policy recommendations and a patient charter, given recent developments in other countries;
  2. Explore aspects of care that are most valuable to patients, and how these align with policy objectives;
  3. Discuss the feasibility of draft recommendations to policymakers regarding the minimum set of factors that should be considered when implementing treatment programs for IPF (e.g., use of stopping rules, education, multidisciplinary care) as well as criteria needed for policy decision-making.

The session was invitation only and conducted using Chatham House rules. Individual comments have been kept confidential but key points raised will be discussed in the summary report.

Dr. Chris Henshall, Chair, Health Technology Assessment International Policy Forum

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